Everyone’s life is different. Death is an individual experience, too. For some people, the dying process may last weeks. For others, it may last a few days or hours. A dying person’s experience may be influenced by their illness or medications, but certain signs and symptoms are common. Patients who begin hospice care earlier in…
The first week of at-home hospice care can bring a flurry of unanticipated activity. However, the pace of visits will generally slow after the first few days and begin to follow a predictable routine. Hospice care is provided by an interdisciplinary team of professionals with experience in end-of-life care. These typically include a hospice physician,…
Hospice provides something more for patients when a cure is not an option. It is a medical care model focused on comfort. Hospice care aims to manage the patient’s symptoms while supporting their quality of life. It provides support for family caregivers, too. Understanding what hospice is — and isn’t — can help patients and…
Volunteers are an integral part of the hospice team, filling roles that range from direct contact with patients to providing clerical and fundraising support for the organization. Hospices that participate with Medicare are required to use volunteers alongside their paid clinical and administrative staff.
Although talking about hospice and end-of life options may feel uncomfortable, it is vital to have this important conversation with your loved ones. When you know their preferences for medical intervention and where they want to be when they die, you can ensure that their wishes are met. Discuss options early Most Americans want to…
With advance care planning, you can ensure that your end-of-life preferences for medical care are honored, even if you are unable to communicate them yourself. Thinking about your wishes for end-of life care may not be easy, but it is important for you, your loved ones, and the healthcare professionals who care for you. Making…
Making plans for the end of a loved one’s life can feel uncomfortable, especially in the wake of a terminal diagnosis. But some practical planning is beneficial, and “putting one’s affairs in order” can be reassuring to the patient and their family. Practical matters End-of-life planning is most effective when the patient is engaged in…
Caregiving often comes with financial pressures. Many caregivers cannot afford to give up their paycheck or risk losing their job if they take extended time off for caregiving. Several national studies show that the cost of being a caregiver is high because it can involve additional out-of-pocket expenses, lost wages, and unpaid work. These options…
Most hospice patients are eligible for Medicare, which covers all aspects of hospice care and services. There is no deductible for hospice services, although there may be a nominal co-payment for prescriptions and for respite care.
Patients and families who choose hospice care often receive a physician’s referral to a specific hospice provider. In some areas, this may be the only option for hospice care. In other cases, patients and families may be able to choose among multiple providers. It is not necessary to choose the hospice recommended by a physician, hospital, or nursing home.
When a life limiting incurable illness no longer responds to treatment, or when treatment severely diminishes the patient’s quality of life and the patient or their proxy has elected not to pursue further treatment, it’s time to consider hospice care. Entering hospice early with weeks or months of life remaining rather than waiting until death…
Most patients enter hospice when a physician refers them for end-of-life care, often after they have been hospitalized or spent time in a nursing care facility. Alternatively, patients or their loved ones may “self-refer” by contacting a hospice provider directly to discuss the patient’s medical status and care needs. In either case, any hospice provider…
Whether you’re a patient, family member, or a friend trying to determine whether hospice is the right choice, HFA is here. We provide guidance before, during, and after the important decisions are made.
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