End-of-Life Ethics in a Changing World
$33.95
As attitudes, technology, and laws around death and dying have evolved in the United States, the ethical challenges facing hospice and palliative care have grown more complex, particularly in the context of a system of regulations established 40 years ago.
This important volume of work by experts in ethics and end-of-life care examines issues of hospice care for children and teens; voluntary stopping of eating and drinking (VSED) and medical aid in dying (MAiD); justice and inclusion; the development of hospice ethics committees; provision of hospice and bereavement care via telehealth; and a host of other timely topics that every hospice team member is likely to encounter. Through both scholarly and personal perspectives, end-of-life care professionals will find wisdom and guidance to inform ethical practice.
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Table of Contents
Foreword
Bruce Jennings and Timothy W. Kirk
Part I: Hospice and Ethics in Context
The Ethics of Hospice: Does Hospice History and Philosophy Match the Current Landscape of End-of-Life Care?
Craig Dresang
Voices
Hospice: From Social Movement to Industry
Christy Whitney Borchard
End-of-Life Ethics: A Social Ecology Approach
Kenneth J. Doka
Voices
The Liminal State of Hospice: Looking Ahead to the Next 40 Years
Alexis Drutchas
Part II: Ethics in Practice
Pandemic Experience of Suffering: Ethical Justification for Palliative Care
Mary Beth Quaranta Morrissey
Cultural Humility: Necessary but Insufficient for Equitable Access to Care
Karen Bullock and Ramona Bullock-Johnson
Voices
The Evolution of the Art and Science of Nursing: A Hospice Nurse’s Perspective on Ethics and Charting
Angela Novas
Providing Ethical Guidance to Surrogate Decision Makers
Lauren Jodi Van Scoy and Erica VanDyke
Ethical Issues in Pediatric Care at End of Life
Kelstan Ellis and Jenni Linebarger
Patient Choice as Death Approaches
Michelle Brassil, Adrienne Jones-Adamczyk, and Patricia Mayer
Voices
One Physician’s Reflections on Patient Choices at End of Life
Hank Willner
Ethical Issues in Pain Management at End of Life
Shana A. Wierchowski and Kathleen Broglio
Voices
Ethics in Grief Counseling
Patti Anewalt
Part III: Emerging Ethical and Organizational Issues
Effective Ethics Committees for Hospices: A Practical Guide
Ryan Pferdehirt
The Case for Ethics Education in Hospice and Palliative Care
Jennifer Moore Ballentine
Ethical Provision and Use of Telehealth at End of Life
Michelle Webb and Mansara Hassan
Voices
The Moral Compass, the Compass Thief, and the Possibility of Grace
William E. Rosa
Index
