Chapter 13: Living and Dying in Nursing Homes

In this chapter, Sandra H. Johnson, JD, addresses how hospice care and long-term care facilities interact and how the changing culture of long-term care can impede effective hospice care. As long-term facilities such as nursing homes shift their focus from custodial care to rehabilitative care, they cease to see themselves as proper homes, and thus cease to see themselves as a place to die. Despite this, and despite the hindrances given to palliation by tight regulation of long-term care facilities, Johnson argues that patients have the right to die in place, even if the place is a nursing home.

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