Caregiving and Loss: Family Needs, Professional Responses
HFA's Year 2001 Initiative - read the news release
It is estimated that there are more than 25 million family caregivers in this country providing 80% of home care services. Caregiving is especially challenging for those coping with terminal illness and facing end-of-life decisions. It's important for healthcare professionals to understand the unique needs of family caregivers and assist them in ways that will provide support and understanding.
Jack D. Gordon,
Chairman and CEO
Hospice
Foundation of America
[Note: Mr. Gordon served as Chairman and CEO of HFA until his death in
2005.]
HOSPICE FOUNDATION OF AMERICA RESOURCES
- Message from Former First Lady, Mrs. Rosalynn Carter
- Articles
The resources below can be used for staff trainings as well as for individuals needing more information. - What Caregivers Need from Doctors - William Lamers, MD
- Hospice as a Model for Caregiving - Marcia Lattanzi-Licht
- Fannie Mae's Elder Care Initiative [Model Workplace Program]
- Hoping This Could Be Somebody Else's Life - © 2001 Elizabeth Halling
- Conclusion - So What Do We Do? - Joyce D. Davidson
- Caregiver Fairs: Support in Action
- Susan Reinhard
All of the above are excerpted from HFA's publication, Caregiving and Loss: Family Needs, Professional Responses, edited by Kenneth J. Doka and Joyce D. Davidson. - Resource List
- Brochures:
- Supporting Your Friend through Illness and Loss
- Caring for Someone Who is Dying
- Request a free set
- Family Caregiving Fact Sheet
- Taking Action: You Can Make a Difference! (18k PDF) - Practical ideas and tips to help family caregivers
- Journeys Article: Caregiving and Loss (18k PDF)
- Assessment Tools
These links provide some models of assessment tools that can be used in situations involving life-threatening illness and dying.- http://www.careofdying.org
- http://www.qlmed.org/
- http://www.dyingwell.org/MVQOLI.htm
- http://www.ama-assn.org/ama/pub/category/4642.html
GUIDE TO THE FAMILY & MEDICAL LEAVE ACT: QUESTIONS AND ANSWERS - download this free consumer guide that provides information on how the FMLA protects you. Available in English or Spanish, it's the ideal supplement to any caregiver's knowledge.
Contact:
Kristen Baker
1-800-854-3402
Fax 202-638-5312
kbaker@hospicefoundation.org
http://www.hospicefoundation.org
