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Hospice Foundation of America
E-Newsletter

Volume 6, Issue 12
December 2006

http://www.hospicefoundation.org


In this issue:

 Message from David Abrams, President/CEO

As we end 2006, HFA is pleased to announce the newest feature of our website, (www.hospicefoundation.org), the Hospice Foundation of America Message Boards. The Message Boards allow a new level of interactivity and an opportunity for professionals and consumers to share their successes, ask questions, and seek information relating to hospice and end-of-life care, caregiving and grief and loss. NOTE: HFA's Message Boards have been discontinued.

As we move into 2007, we ask you to reflect for a moment on this question: What were some of the changes or trends in the area of grief and bereavement that impacted your community and your work in 2006? And what ways did you find to address them, either personally or professionally?

While many readers of this newsletter are not hospice professionals, many individuals have had experience with loss, and we are interested in that experience. We encourage you to share your answers in a forum on our new Message Boards. It is our hope that these forums will allow more direct conversation between those working in hospice and end-of-life care, and will provide HFA with ongoing insights as we continue our work.

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Focus on: Planning for HFA’s 14th Annual National Bereavement Teleconference: Living With Grief®: Before and After the Death

Recently in Washington, the program content for HFA’s upcoming national bereavement teleconference, Living With Grief®: Before and After the Death was the subject of intense focus during a planning meeting with the full panel. While this year’s topic is in many ways a return to a familiar subject for many teleconference participants, this panel spent its time looking forward, discussing the most current thinking about grief and bereavement.

Frank Sesno, an Emmy-award winning journalist, special correspondent with CNN and a faculty member George Washington University’s School of Media and Public Affairs, will moderate the program, which features panelists:

  • Scott W. Bradley, MSW, CT, CFSP
  • Kenneth J. Doka, PhD, MDiv
  • Lorraine Hedtke, MSW, ACSW, LCSW
  • Patricia Murphy, PhD, APN, FAAN
  • Robert A. Neimeyer, PhD
  • Robert Washington, PhD, MDiv

The panelists all bring a great depth of experience and research to the work of the teleconference. Yet one concern shared by the group is that, while there is a serious body of knowledge about grief and bereavement that is evidence-based, much about the grieving process is still caught up in “folklore,” or in outdated notions of grief. As one panelist noted, the process of grief should no longer be seen as “saying goodbye,” “creating artificial closure”, or “moving on and creating a new life.” All agree that a plurality of models is needed, because we have a plurality of grievers; the principles behind the models should be used for guidance.

Much of the discussion focused on the incredible resiliency of those who are grieving. One panelist reminded the group that caregivers should be “amazed” by this resilience, and be careful not to pathologize it. One panelist described what they do as providing a “guide bar” to grievers. Professionals can’t necessarily help grievers “make meaning”, but can guide them on how to do so. But it was also noted that some grievers don’t make meaning of their grief; they simply survive.

The panelists shared their ideas of the purpose of grief. One panelist sees the process as a way of “reaffirming what can be and reconstructing what we no longer have.” One pertinent question posed was, “how do people construct continuity between the process of grief with their ‘normal’ life, and still recognize themselves?” Another panelist talked about the importance of giving grievers permission to keep a relationship alive, even while adjusting to learning to live without the person who has died. The panelists agreed upon the idea that grief is about relationships; one panelist called it a “relational emotion, like love.” One panelist reminded the group that an important role of those professionals supporting grievers is to “normalize the agony”, and acknowledge how difficult this process really is.

The teleconference program is never scripted, but the panelists develop a general set of guidelines to shape their conversations.

HFA’s 14th annual National Bereavement Teleconference, Living With Grief®: Before and After the Death, will be broadcast live Thursday, March 22, 2007 from 1:30--4:00pm EDT. This satellite and webcast teleconference, as well as an accompanying book, will explore the most current theoretical perspectives on loss and grief as experienced by persons throughout a life-limiting illness and by survivors after the death. Panelists will discuss topics such as

  • anticipatory grief and mourning
  • meaning-making
  • life review
  • assisting families at the moment of death
  • funerals, memorials, and other rituals and their importance in the grieving process
  • new insights and developments in our understanding of grief
  • implications for practice, including effective interventions
  • and the importance of self-care for professionals.

The program will be useful to a range of professionals who counsel persons who are bereaved including psychologists, counselors, clergy, social workers, nurses, case managers and other health care workers, and funeral directors, as well as educators, teachers and school-based personnel. The information will also be helpful to individuals who offer education on loss, grief, dying or death.

Did You Know: HFA now offers the teleconference via satellite AND webcast. Learn more about the technical requirements.

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News from the Hospice World

The Maine Pain Initiative, a committee of the Maine Hospice Council, has released “Pain Management at the End of Life: A Physician’s Self-Study Packet.” This packet covers the clinical issues, ethical considerations and common myths of pain management, and includes tools for clinicians. The PSSP has been accredited for continuing education credits for physicians by the Maine Medical Education Trust the Maine Osteopathic Association. Copies of the packet may be obtained by completing the request form on the Maine Hospice Council website, or by calling MHC at 800-438-5963.

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What’s New @HFA

HFA announces a new special issue of Journeys – A Newsletter to Help in Bereavement. This new issue, Understanding Support Groups, introduces readers to the benefits of support groups for the bereaved. With articles written by authorities in the field, and by people who have experienced support groups as part of their own bereavement, Understanding Support Groups serves as a helpful guide to those who want more information about support groups and how they might be helpful in their own grieving process.
Understanding Support Groups is available at a special price of 20 cents per copy for orders of 25 or more. Orders at this special price must be received by January 31, 2007 and can be placed here, or by calling HFA toll free at 1-800-854-3402.

HFA is proud to announce its newest interactive feature, the Hospice Foundation of America Message Boards. The Message Boards are intended to be a place for caregivers and care recipients to come together and share their hospice experience. The message boards can be used to ask a question, share an experience or to ask for support from the virtual hospice community.
If you wish to post a message, click here to JOIN the board. Once you create a username and password, you will immediately be able to login and post a message, just click the Forums tab on your right. You may view the forums at any time. Please email msgboard@hospicefoundation.org if you have difficulty using this message board, or call us at 800-854-3402.

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Upcoming Conferences and Educational Opportunities

The Center to Advance Palliative Care (CAPC) will sponsor an audio conference, “Moving PC into the ED: Ensuring the Right Care for Seriously Ill Patients – Right from the Beginning” on January 11, 2007 from 1:30 - 2:30 PM Eastern. This audio conference will explore ways in which palliative care can be an integral part of the future of emergency care in the US. A Q&A period will follow the PowerPoint presentation. The cost for this call is $75 per line. To register and for more information, see the website.

An upcoming episode of the PBS show “Second Opinion” will focus on end-of-life issues. Host Dr. Peter Salgo and a panel of healthcare consumers and medical experts navigate the difficult questions surrounding end-of-life care. The companion Web site to "Second Opinion" includes an episode transcript, helpful information about coming to terms with end of life care, questions for doctors, links to additional resources, and more. Air dates and times vary; click the "Check Local Listings" button to find out more about the show.

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Site Coordinator’s Corner

Remember: Register as a Site Coordinator for HFA’s 14th annual National Bereavement Teleconference before December 20 and pay only $25. This year’s teleconference, Living With Grief®: Before and After the Death, will be broadcast Thursday, March 22, 2007 from 1:30--4:00pm. The fee to register after December 20 is $50. HFA is pleased to continue to make registration available for this important program at this low rate, to ensure accessibility to the largest possible audience.

ADDED SAVINGS: You may also purchase a copy of the Living With Grief®: Before and After the Death full-length DVD at a $10 savings! The cost of registration, with the DVD, is $40 before or on December 20, and $65 after December 20. Be sure to register early for the greatest savings!

HFA has improved its registration process this year. Once your form and payment is received, you will promptly receive a detailed Site Coordinator’s Manual in the mail and a password to access teleconference materials on our website. Early next year, you will receive your complimentary copy of the teleconference companion book. Please contact us with any questions at 800-854-3402 or via e-mail at telecon@hospicefoundation.org .

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This newsletter is sent to more than 6,600 subscribers on the 2nd Wednesday of every month to keep you informed of what is happening in the fields of hospice, grief and bereavement, and caregiving, as well as what's new at HFA.  We encourage you to forward this e-newsletter to an interest colleague or friend. To subscribe, go to HFA's E-Newsletter sign-up page.

Privacy Statement: In no case will we share e-mail addresses. See the full text of HFA's Privacy Policy.

This newsletter is published by Hospice Foundation of America
David Abrams, President/CEO
http://www.hospicefoundation.org/
Board of Directors: Thomas E. Bryant, MD, JD; Myra MacPherson; Priscilla Perry; Patricia Spulak; Thomas Spulak
© Hospice Foundation of America 2006


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