Hospice Foundation of America
E-Newsletter
Volume 6, Issue 12
December 2006
http://www.hospicefoundation.org
In this issue:
Message from David Abrams,
President/CEO
As we end 2006, HFA is pleased to announce the newest feature of our
website, (www.hospicefoundation.org), the Hospice Foundation of America
Message Boards. The Message Boards allow a new level of interactivity
and an opportunity for professionals and consumers to share their
successes, ask questions, and seek information relating to hospice and
end-of-life care, caregiving and grief and loss. NOTE: HFA's Message Boards have been discontinued.
As we move into 2007, we ask you to reflect for a moment on this
question: What were some of the changes or trends in the area of grief
and bereavement that impacted your community and your work in 2006? And
what ways did you find to address them, either personally or
professionally?
While many readers of this newsletter are not hospice professionals,
many individuals have had experience with loss, and we are interested in
that experience. We encourage you to share your answers in a forum on
our
new Message Boards. It is our hope that these forums will allow more
direct conversation between those working in hospice and end-of-life
care, and will provide HFA with ongoing insights as we continue our
work.
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Focus on: Planning for HFA’s 14th Annual National Bereavement
Teleconference: Living With Grief®:
Before and After the Death
Recently in Washington, the program content for HFA’s upcoming national
bereavement teleconference, Living With Grief®: Before and After the
Death was the subject of intense focus during a planning meeting with
the full panel. While this year’s topic is in many ways a return to a
familiar subject for many teleconference participants, this panel spent
its time looking forward, discussing the most current thinking about
grief and bereavement.
Frank Sesno, an Emmy-award winning journalist, special correspondent
with CNN and a faculty member George Washington University’s School of
Media and Public Affairs, will moderate the program, which
features panelists:
- Scott W. Bradley, MSW, CT, CFSP
- Kenneth J. Doka, PhD, MDiv
- Lorraine Hedtke, MSW, ACSW, LCSW
- Patricia Murphy, PhD, APN, FAAN
- Robert A. Neimeyer, PhD
- Robert Washington, PhD, MDiv
The panelists all bring a great depth of experience and research to the
work of the teleconference. Yet one concern shared by the group is that,
while there is a serious body of knowledge about grief and bereavement
that is evidence-based, much about the grieving process is still caught
up in “folklore,” or in outdated notions of grief. As one panelist
noted, the process of grief should no longer be seen as “saying
goodbye,” “creating artificial closure”, or “moving on and creating a
new life.” All agree that a plurality of models is needed, because we
have a plurality of grievers; the principles behind the models should be
used for guidance.
Much of the discussion focused on the incredible resiliency of those who
are grieving. One panelist reminded the group that caregivers should be
“amazed” by this resilience, and be careful not to pathologize it. One
panelist described what they do as providing a “guide bar” to grievers.
Professionals can’t necessarily help grievers “make meaning”, but can
guide them on how to do so. But it was also noted that some grievers
don’t make meaning of their grief; they simply survive.
The panelists shared their ideas of the purpose of grief. One panelist
sees the process as a way of “reaffirming what can be and reconstructing
what we no longer have.” One pertinent question posed was, “how do
people construct continuity between the process of grief with their
‘normal’ life, and still recognize themselves?” Another panelist talked
about the importance of giving grievers permission to keep a
relationship alive, even while adjusting to learning to live without the
person who has died. The panelists agreed upon the idea that grief is
about relationships; one panelist called it a “relational emotion, like
love.” One panelist reminded the group that an important role of those
professionals supporting grievers is to “normalize the agony”, and
acknowledge how difficult this process really is.
The teleconference program is never scripted, but the panelists develop
a
general set of guidelines to shape their conversations.
HFA’s 14th annual National Bereavement Teleconference, Living With
Grief®: Before and After the Death, will be broadcast live Thursday,
March 22, 2007 from 1:30--4:00pm EDT. This satellite and webcast
teleconference, as well as an accompanying book, will explore the most
current theoretical perspectives on loss and grief as experienced by
persons throughout a life-limiting illness and by survivors after the
death. Panelists will discuss topics such as
- anticipatory grief and mourning
- meaning-making
- life review
- assisting families at the moment of death
- funerals, memorials, and other rituals and their importance in the
grieving process
- new insights and developments in our understanding of grief
- implications for practice, including effective interventions
- and the importance of self-care for professionals.
The program will be useful to a range of professionals who counsel
persons who are bereaved including psychologists, counselors, clergy,
social workers, nurses, case managers and other health care workers, and
funeral directors, as well as educators, teachers and school-based
personnel. The information will also be helpful to individuals who offer
education on loss, grief, dying or death.
Did You Know: HFA now offers the teleconference via satellite AND
webcast. Learn
more about the technical requirements.
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News from the Hospice World
The Maine Pain Initiative, a committee of the Maine Hospice Council, has
released “Pain Management at the End of Life: A Physician’s Self-Study
Packet.” This packet covers the clinical issues, ethical considerations
and common myths of pain management, and includes tools for clinicians.
The PSSP has been accredited for continuing education credits for
physicians by the Maine Medical Education Trust the Maine Osteopathic
Association. Copies of the packet may be obtained by completing the
request form on the
Maine Hospice Council website, or by calling MHC at 800-438-5963.
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What’s New @HFA
HFA announces a new special issue of Journeys – A Newsletter to Help in
Bereavement. This new issue, Understanding Support Groups, introduces
readers to the benefits of support groups for the bereaved. With
articles written by authorities in the field, and by people who have
experienced support groups as part of their own bereavement,
Understanding Support Groups serves as a helpful guide to those who want
more information about support groups and how they might be helpful in
their own grieving process.
Understanding Support Groups is available at a special price of
20 cents per copy for orders of 25 or more. Orders at this special price
must be received by January 31, 2007 and
can be placed here,
or by calling HFA toll free at 1-800-854-3402.
HFA is proud to announce its newest interactive feature, the Hospice
Foundation of America Message Boards. The Message Boards are intended to
be a place for caregivers and care recipients to come together and share
their hospice experience. The message boards can be used to ask a
question, share an experience or to ask for support from the virtual
hospice community.
If you wish to post a message,
click here to JOIN the board. Once you
create a username and password, you will immediately be able to login
and post a message, just click the Forums tab on your right. You may
view the forums at any time. Please email
msgboard@hospicefoundation.org
if
you have difficulty using this message board, or call us at
800-854-3402.
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Upcoming Conferences and Educational Opportunities
The Center to Advance Palliative Care (CAPC) will sponsor an audio
conference, “Moving PC into the ED: Ensuring the Right Care for
Seriously Ill Patients – Right from the Beginning” on January 11, 2007
from 1:30 - 2:30 PM Eastern. This audio conference will explore ways in
which palliative care can be an integral part of the future of emergency
care in the US. A Q&A period will follow the PowerPoint presentation.
The cost for this call is $75 per line. To register and for more
information,
see the website.
An upcoming episode of the PBS show “Second Opinion” will focus on
end-of-life issues. Host Dr. Peter Salgo and a panel of healthcare
consumers and medical experts navigate the difficult questions
surrounding end-of-life care. The companion Web site to "Second Opinion"
includes an episode
transcript, helpful information about coming to terms with end of life
care, questions for doctors, links to additional resources, and more.
Air dates and times vary;
click the "Check Local Listings" button to find out more about the show.
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Site Coordinator’s Corner
Remember: Register as a Site Coordinator for HFA’s 14th annual National
Bereavement Teleconference before December 20 and pay only $25. This
year’s teleconference, Living With Grief®: Before and After the Death,
will be broadcast Thursday, March 22, 2007 from 1:30--4:00pm. The fee to
register after December 20 is $50. HFA is pleased to continue to make
registration available for this important program at this low rate, to
ensure accessibility to the largest possible audience.
ADDED SAVINGS: You may also purchase a copy of the Living With Grief®: Before and After the Death full-length DVD at a $10 savings! The cost of
registration, with the DVD, is $40 before or on December 20, and $65
after December 20. Be sure to register early for the greatest savings!
HFA has improved its registration process this year. Once your form and
payment is received, you will promptly receive a detailed Site
Coordinator’s Manual in the mail and a password to access teleconference
materials on our website. Early next year, you will receive your
complimentary copy of the teleconference companion book. Please contact
us with any questions at 800-854-3402 or via e-mail at
telecon@hospicefoundation.org
.
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This newsletter is sent to more than 6,600
subscribers on the 2nd Wednesday of every month to keep you informed of
what is happening in the fields of hospice, grief and bereavement, and
caregiving, as well as what's new at HFA. We encourage you to
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This newsletter is published by Hospice
Foundation of America
David Abrams, President/CEO
http://www.hospicefoundation.org/
Board of Directors: Thomas E. Bryant, MD, JD; Myra MacPherson; Priscilla Perry; Patricia Spulak; Thomas
Spulak
©
Hospice Foundation of America 2006
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